We are asking for your help
Sarah
Sarah

In 2009, our dear friend Sarah was diagnosed with ALS. If you don't know about this disease (and there's plenty of information on the Fact Sheet attached), it is a motor-neuron disorder that destroys the brain's ability to control the rest of the body. While Sarah's mind stays sharp she will lose her ability to walk, talk, swallow and breathe.


ALS is also fatal. On average, it kills its victims in three years. And yet, ALS experts tell us that the better the care someone receives, the longer they will live. Please think about that. Not only is it in our power to improve the quality of Sarah's life but, given the remarkable advancements in recent stem cell research, we have a fighting chance to extend her life until effective therapies are found.


Our mission is simple. We want to slow down the progression of Sarah's disease by providing her with the best quality of care she can receive. But, for this, we need your help.


This care Sarah needs comes at a price and we've provided a budget outlining anticipated costs and the significant shortfalls in health insurance coverage. We expect it to cost $1.2 million for Sarah to receive what she needs from feeding tubes and respirators, to wheelchairs, a van, nurses, therapists and supplements. Our goal is to get as close to that sum as possible.


Tim and Sarah would like nothing more than to be able to look after their family without asking anyone for help. And yet those closest to them know that Sarah's disease hit soon after she lost her company disability and life insurance (she has none) and, while they have hugely supportive families, the help that Sarah needs is completely beyond their means. It's because of this, and because of our great love for her, that we are turning to you.


Given the terrifying speed with which the disease is tightening its hold on Sarah, there is great urgency for funds. Already, Sarah is unable to walk or stand unaided and her ability to speak is severely impaired. Soon enough, the disease will attack even more critical functions, such as her breathing and swallowing. If we don't act now, Sarah, Tim, Lola and Luke will be left unprepared and unhappy. Please help us in making sure that doesn't happen.


There are many ways to contribute, from a few dollars to the more significant sums we hope some of you will be able to provide. Below, you'll see what we've done to make giving as easy and painless as possible. We truly hope you can help and, and on behalf of our lovely Sarah, want to thank you from the bottom of our hearts.





To read the article on Sarah from Marie Claire, please click here.

A letter from Sarah Update from Tim
how you can give financial need ALS fact sheet